I knew there would be miracles!
What was ahead of us today seemed daunting. We had to get Moses"cleaned out" for his big procedure on Tuesday. He has been on a liquid diet since Friday night so he is starving! Normally, when he gets hungry, he gets really angry. That started out being my first worry and then God started to knock out my worries one by one. He was in a fantastic mood all day!!! Like one of his best days ever! Not frustrated, not hangry, no screaming, no hitting. In fact, it was better than just avoiding difficult behavior. God abundantly blessed us with lots of affection from Moses. Something we don't often get.
Next I was wondering how he would do in this new environment, since newness can cause him high anxiety. Like I said, amazing! His hospital room has two things that has brought him so much peace...a balcony and a bathtub. A warm bath and access to the sun are often super calming! Praise God!! Most hospitals do not have baths.
Then, of course I was wondering how in the world we could avoid a feeding tube being placed to clean him out. For those who aren't familiar with that miniscual procedure it involves being awake and having someone shove a tube up your nose and then asking you to swallow it. In order for him to avoid this invasive little tube that is supposed to be "no big deal," he had to drink 8oz of laxative every 30 minutes. That's 80 fluid ounces of laxatives! They warned us that kids often start refusing because it gets to be too much. They often throw up because they are too full. And Moses completed it!!!!! Doctors were amazed and God got glory! No feeding tube for this kid! No taped face. No gagging or being restrained. Wahoo!!
Another crazy miracle!!! Moses looked at the clock in his room and said loud. Often times, clocks that tick agitate him. Not even joking guys, it just shut off. What?! It did! Granted it has since turned back on by itself but God used it to remind us that he is taking care of the little stuff.
Then, my worry was that Moses wouldn't be able to sleep. There are a bunch of windows in his room that shine the light of the outside hallway and nurses station. He sleeps at home in a pitch black room. I realized that I had packed a bundle of black construction paper that we could use to cover the windows. Don't ask me why I packed it! Couldn't tell ya. I wasn't being super thoughtful and thinking ahead. I just saw it laying on our counter and thought, maybe I should pack that. Why?! God knew exactly why, to cover Moses' windows. And now we have a fast asleep little boy!
Moses also has a fantastic nursing staff that is super accommodating. They have done anything to make Moses comfortable, even if it meant bending the rules. True patient care and not hospital bureaucracy. It has helped me to relax and not have to feel like I have to continually fight for Moses. I can focus on just being there for him.
Oh and the place we are staying is a sweet reminder of God's extravagant love. Undeserved, beautiful, big and free!
Tomorrow should be a pretty chill day and we are looking forward to that! Thanks for your prayers!! You helped make miracles happen for our little man today. Tuesday morning is our big procedures. These are invasive and can't be avoided. Pray for answers and that God would be his sedative!
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