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Showing posts from April, 2017

Joy comes in the morning but grief sucks!

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I’ve often wondered, how in the world do some families who are affected by disability say, “Autism is such a blessing!” It’s almost frustrating when I hear a person say that because in my mind I’m thinking, “Yay, cleaning up poop that has been smeered all over is a HUGE blessing!” or “Not being able to hear how my kid’s day is, HUGE blessing!” It’s made me mad because I am so far from saying that! Or when someone says, “I wouldn’t change my child for anything!” Well, you know, right now I would. I would really love for him to not scream all the time. I would really love for him to answer my questions. I’m just not able to say those things…YET. I have a feeling that those sayings may come in the future. At least, I hope they do. Right now, we are in a season of heavy grief. We are seeing a lot of the experiences that our family will probably never have and it’s hard saying goodbye to those things.   Things like going to my son’s football, soccer or baseball games. Things like ha

San Diego and Living in a world of unknown

2017 has been a whirlwind of a year. I remember celebrating the New Year in January, we were so hopeful for the newness that was ahead, for the fresh start. 2016 was the year that Moses was diagnosed with a wicked rare heart condition and we were looking forward to falling into a new normal of maintenance. We no longer had to give him medication after 4 hours (waking him up in the middle of the night). It seemed as though we had finally adjusted to this new diagnosis and were thankful to take some deep breaths to lick our wounds. After a diagnosis that rocks your world, you may often only start to see how your family, kids, marriage has been affected till after the doctors visits have calmed down, therapies been put into place, insurance been taken care of. That feeling of newness, freshness, anticipation of good…somehow I think we should celebrate more often. Not just one day of the year. As Christians, I think we get a taste of that again at Easter. We remember that the old has