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Showing posts from March, 2017

Girls You Are Heroes - A letter to my girls

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Oh my sweet girls. As I sit here in downtown Gilbert, taking in the sounds around me, enjoying the sweetness of time to just think, I can’t help but think of you right now. For so long I have wanted to write you a letter to tell you more about our life. To explain to you more about why mommy cries so much. Maybe someday, you will read this and understand better what I am not sure you may not understand right now, at age 8, 4 and 14 months. You girls, are my heroes! Our life as a family, it has not been easy and you are the first ones to see and experience that. However, because this is all you have known, I wonder how much you see the struggle. I wonder if your free spirits and flexibility are a result of not having to   mourn some of the luxuries that you have not been able to experience. Some of the things and experiences that I wish I could give you but can’t at this time because of how difficult Moses' health makes our day to day. Experiences like going to a restaurant ...

The Pendulum is in Motion

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Here we are again. Writing an update of the medical happenings in the Stone home. You know, someday we hope that we won’t have to write these updates. Someday maybe this blog will be filled with posts of redone furniture or fun new recipes, maybe lessons we are teaching the kids. Not today my friends. Not today. Today we invite you into our new journey with Moses. For the past month, we have been in survival mode, just trying to make it to bedtime. Why? You ask. What is going on? A month ago, something very strange started happening with Moses and it lasted for eight days! Moses stopped eating and stopped using the bathroom. At first, we didn’t really know what to think of this. My first reaction as an ABA (Applied Behavior Analysis) momma was, this might be a sensory issue or a behavior. But, I quickly dismissed that thought and chose to believe my sane momma instinct. Something was wrong, very wrong. We would try to give him anything to eat, all his favorites and he woul...